Erin Rock'n Piggies!

Erin Rock'n Piggies!
2 years Old

Tuesday, November 9, 2010

Genetic Testing for Erin

Last week we heard back from the insurance company that the 3 initial genetic tests we were waiting to have have been approved. We contacted the pediatric neurologist at Children's to let him know we want to go ahead with the tests. Once we hear back we can go and get these tests done. The outcome will tell us if our little angel has Rett Syndrome. If you are unfamiliar with Retts you can read about it here:http://www.rettsyndrome.org/about-rett-syndrome.html


We are praying it is not God's will for our little girl. Please pray with us! Thank you!

2 comments:

Kelly said...

I am a "Rett Syndrome" mommy. www.brooklynbutler.blogspot.com I will be praying for Erin. I pray it is not Rett Syndrome but PLEASE kow that if it is there are LOTS of us out there to help with anything you need! Hugs and prayers from Indiana - the waiting is so hard!

Kellee said...

Thank you for your comment Kelly. We are going to the lab today to have her 2nd round of genetics done. Everything came back on the battery of initial tests and MRI was normal. That was about 6 months ago. Are you on facebook? I'd love to have a more direct way of communicating with you.