Erin's Developmental Journey

I have started a medical journal for after each of Erin's Dr. appts. to keep everything in order for future appt.s with other specialist.
It's mostly for me but I'm posting it as notes to keep friends and family informed who are following Erin's progress.
September 30th, 2010
15 month Visit
Weight 19.65
Height 29"
After a very thorough 2 hour visit with Dr. A the following issues were discussed: Vaccines, global development, spit up, height, weight, head size; nutrition and potentially working with a special needs coordinator for possible support equipment to assist Erin.
Spit up: Her spit up is being contributed to her overall soft muscle tone so her esophagus muscle isn't closing as tight as it would if she had regular muscle tone. This is causing spit up especially upon position changing. Because she is not experiencing any aspiration, choking, discomfort they didn't find it concerning. Keeping her elevated as much as possible will help.
Vaccines: (Flu shot 1 of 2), Dip, Polio, Hib - follow up made for 2nd Flu shot in series.
Next visit in 3 months for 18 months appt.
Hips: Tomorrow we have an appt. at Holy Family to have her hips scanned for potential congenital hip disorder to rule that out. It's not an x-ray but more of a screening.
Nutrition: Dr. gave us a referral for a pediatric nutritionist; this is just informative and not a top priority at this time because her weight is perfect for her height so her spit up is not causing any kind of malnutrition.
Because she has more than one issue he recommended working with a special needs coordinator to help me keep everything in order. We will address this after Kate is born. Not top priority for this next month.
Neurology/Development: Erin's pediatric neurology appt. is Oct 5th at Children's in Boston followed by genetics in November. Dr. A. said to ask the pediatric neuro if they feel Erin could benefit in any special chairs/strollers to help with her lack of muscle tone.
Hopefully I won't be in labor or induced on the 4th otherwise my husband will be taking her on the 5th by himself because we had to wait 3 months for this appt. The only wrinkle will be if they want to induce on the 4th because then Sean won't be able to take her if I'm in mid labor. I will be really pushing for induction on the 5th so we don't have to miss her appt.
Happy that we have some more information, direction and potential options for her. God has given us this beautiful child to care for so I'm not letting this get me down. We will address all her needs as they come the best we can and continue to love and nurture this little angel to help her reach her full potential.
Prayers and continued support for Erin is always appreciated.